Inspirational Stories of families carrying their baby to term after a fatal diagnosis and resources that offer many options and support through out and after pregnancy. Also Survival Stories of babies who had received a fatal prenatal diagnosis.
Diagnosis Specific Resources
Anencephaly:
Shane Michael Haley Inspirational story of how a couple beautifully made the most of their pregnancy after receiving a fatal diagnosis with anencephaly.
The Gift of Rachel's Life
Joshua's Little Buddies Joshua's mommy hand makes BEAUTIFUL hats for babies with Anencephaly free of charge.
Survival Stories (in progress, please check back for more stories soon)
Stories of baby's who survived conditions after being given a fatal prenatal diagnosis.
Anencephaly
Baby Angela Her Facebook and Her story and Her Mommy's blog
Baby Roman https://m.facebook.com/RomanStrong17/
Heart Conditions
Baby Matthew More on his story
Holoprosencephaly
Families for HoPE
Hydrops Fetalis
Moxie
Facebook Stories: HydropsFetalisAwareness
All About Hydrops
Omphalocele
Giant omphalocele Jackson's story
Thanatophoric Dysplasia Type 1
Miracle Mann Survival Story
Thanatophoric Dysplasia Pregnancy & Survivors Group on Facebook
Cornelia DeLange SyndromeCDLS Foundation
NORD
Trisomy 18
Shelby's Story (Facebook)
Loving Lavender
Back to Prenatal Diagnosis page
PLEASE see our Main Resource List
or save for later, for many many more links you may find helpful.
